Showing posts with label blindness. Show all posts
Showing posts with label blindness. Show all posts

Monday, December 3, 2012

settle down, it'll all be clear

Allow me to transcribe an entry (by me) out of my grandma's wellness journal. Yes, we keep a wellness journal. This may be the most hurtful thing we've ever gone through and besides wanting to remember everyday, I think it's the most important thing to monitor. I know you weren't judging me, but I felt the need to explain...

"Woke up @ 3:00 am - took Seroquel to sleep, but still woke up. Finally went back to sleep @ 4am - didn't wake up until 6:00am./Did not have very good morning - messed up a recipe & it hurt her feelings./Throughout the morning she became agitated on and off./As the day went on she got a little better./Started her Paxil mid-day. Will start tomorrow for longevity @night time./Her spirits got better towards evening./ Morning sugar: 80 Evening Sugar: 116."

Boring, I know. But let me tell you - it's nice to tell someone everyday how one of the most important people in your life is doing, even if it is just a $2 notebook from Wal-Mart. Sometimes when I finish I feel devastated. Others, light. But altogether, better, you know? Writing can do that. Strike that - writing does that is what I meant to say.

I snatched a few moments from the universe this afternoon to tell you that my writing is the love of my life - I wish I had more time these days to be the suitor she deserves, but I don't. I do pine for the quiet tip taps of my keyboard and crafting a sentence with my own hands -- one day, I'll be married to words. Right now, I'll be content with the moments we get to make out in the sunshine.

Tuesday, November 20, 2012

I Think I'm Cured

It's been a long time. And I'm not going to sugar coat anything, so, be prepared for facts that slice through human bodies easily and without remorse.

Let's start with the basics: life can fuck you up. That seems circular, I know, but go with it. Truths are vague and ever changing and unfair. Existence is hard, because it is, and also because, if we go in and out of it, is it really existing. Okay. Basics covered.

Now, on to the hard-stuff: Remember my grandma who had the health scare? Well, it wasn't over. As it is with life, things only got worse.

She was finally diagnosed with Giant Cell Arteritis. The devastation is, though, she was diagnosed too late by her back-woods physicians. She has lost complete vision in her right eye and approximately 80% in the other. No peripheral. She'll close her good eye and cry about the "gray mud" she sees. "Gray mud" she'll cry - that's all I see. Now, the 20% she has retained is dim. She calls life the "Dark City" - and it wouldn't be so beautiful if it wasn't so shattering. She'll smile and shake her head and cry and convince me that she'll be fine living in the Dark City.

Yesterday morning she woke up and everything was a little dimmer. She began shaking and crying and we admitted her into the hospital again. This time in Indy. (We'll never go back to Ball Memorial in Muncie. Fuck those guys).

Blindness, guys. We are battling an auto-immune disorder that attacks blood flow to the brain- it's already killed one optic nerve and it's trying so hard to slaughter the other.

We're sad. My papa cries and cries when she's not around. She cries and cries when he's not around. We're all dying in the Dark City.

But I suppose we all are.

I will write more about this somewhere, sometime.